Tuesday, February 22, we met again with Dr. Kotsanis for more blood draws/lab stuff and then that afternoon we met Dr. Meyers, the Ear/Nose/Throat dr. We really like them both.
The mornings appointment was mostly lab stuff.. Dr. Kotsanis's office set up an appointment for Thursday (one week from today, March 3.) a port placement surgery..this will be a day surgery. I'm not sure of the doctors name, yet, who will be performing this, but it is pretty standard, this doctor performs these daily. It's a small procedure. The port will is similar to the Picc line that Derek has had previously. He will receive intravenous treatments through the port. Nurses have such a difficult time locating Derek's veins, so this will be the best solution, not to have to dig around weekly to begin IV's. We will not have the German test back, in order to know what chemo to begin, so for now, they will begin other treatments, such as high dose vitamin c through the port. This Dr. Kotsanis is a mover.. we will begin treatments ASAP!! We discussed another PET scan, to have a baseline as to where we are beginning.. again;) Derek is due one, it's been a little over 3 months since our last one in October. So we will be traveling to Oklahoma City for that ASAP:)
Next, we met Dr. Meyers for the first time, and we really like him. He is friendly and warm..very different from most of our doctors:) He is alos considered THE GUY for the parotid gland. He looked Derek over and asked a series of questions. After examining Derek and asking his questions, he explained to us that 1. All the 'red flags' that he would look for that would point to the tumor in Derek's neck as being malignant where not there! (WHEW!), however, Derek does have a rather large malignancy in his leg, so we need to be sure. 2.) He isn't going to go in there and remove it with out knowing what it is. SO.... we need a PET Scan.
All of Derek's previous scans have been from the neck down, I beleive. I know in the past they have looked at this lungs, spleen, and various other organs where liposarcomas like to travel. Up to this point all of those areas have been clean, and we are not expecting anything other than clean scans this go around with the exception of Derek's leg, obviously. This scan however, will include Derek's head in order to look at the tumor growing on the parotid gland. We are praying for that tumor to be benign. We are trying to scedule that scan for this coming Tuesday, March 1.
I will update more as I have information. So for now...
Please agree with us in prayer:
1. We are able to get into the Pet scan on Tuesday.
2. A good plan for the kids and traveling, etc.
3. THAT THE TUMOR GROWING ON THE PAROTID GLAND BE BENIGN!!! ***
4. Easy day surgery on Thursday for Derek.
5. Traveling mercies.. if all this falls into place right, we will be traveling to OKC Monday evening and back home Tuesday evening, then traveling to Grapevine Wednesday evening and back home Thursday after the procedure. (Shuffling kids during the process)
6. That they have a successful testing of Derek's blood in Germany #1. that they are able to harvest tumor cells from his blood and #2 that they are able to find an effective treatment.
Thank you~God bless,
Misty:)
The mornings appointment was mostly lab stuff.. Dr. Kotsanis's office set up an appointment for Thursday (one week from today, March 3.) a port placement surgery..this will be a day surgery. I'm not sure of the doctors name, yet, who will be performing this, but it is pretty standard, this doctor performs these daily. It's a small procedure. The port will is similar to the Picc line that Derek has had previously. He will receive intravenous treatments through the port. Nurses have such a difficult time locating Derek's veins, so this will be the best solution, not to have to dig around weekly to begin IV's. We will not have the German test back, in order to know what chemo to begin, so for now, they will begin other treatments, such as high dose vitamin c through the port. This Dr. Kotsanis is a mover.. we will begin treatments ASAP!! We discussed another PET scan, to have a baseline as to where we are beginning.. again;) Derek is due one, it's been a little over 3 months since our last one in October. So we will be traveling to Oklahoma City for that ASAP:)
Next, we met Dr. Meyers for the first time, and we really like him. He is friendly and warm..very different from most of our doctors:) He is alos considered THE GUY for the parotid gland. He looked Derek over and asked a series of questions. After examining Derek and asking his questions, he explained to us that 1. All the 'red flags' that he would look for that would point to the tumor in Derek's neck as being malignant where not there! (WHEW!), however, Derek does have a rather large malignancy in his leg, so we need to be sure. 2.) He isn't going to go in there and remove it with out knowing what it is. SO.... we need a PET Scan.
All of Derek's previous scans have been from the neck down, I beleive. I know in the past they have looked at this lungs, spleen, and various other organs where liposarcomas like to travel. Up to this point all of those areas have been clean, and we are not expecting anything other than clean scans this go around with the exception of Derek's leg, obviously. This scan however, will include Derek's head in order to look at the tumor growing on the parotid gland. We are praying for that tumor to be benign. We are trying to scedule that scan for this coming Tuesday, March 1.
I will update more as I have information. So for now...
Please agree with us in prayer:
1. We are able to get into the Pet scan on Tuesday.
2. A good plan for the kids and traveling, etc.
3. THAT THE TUMOR GROWING ON THE PAROTID GLAND BE BENIGN!!! ***
4. Easy day surgery on Thursday for Derek.
5. Traveling mercies.. if all this falls into place right, we will be traveling to OKC Monday evening and back home Tuesday evening, then traveling to Grapevine Wednesday evening and back home Thursday after the procedure. (Shuffling kids during the process)
6. That they have a successful testing of Derek's blood in Germany #1. that they are able to harvest tumor cells from his blood and #2 that they are able to find an effective treatment.
Thank you~God bless,
Misty:)
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